This blog originally started as a place for us to share our family updates with our friends and family. Some of our original posts were simply full of photos, or short stories of our daughter’s antics.
As time evolved and our family grew, we found there was a shortage of information online for some of the various health issues that our son was going through. There are numerous Facebook support groups for the varying issues, but as a family that was new to the special needs and medical child community, we started our journey on google, and were disappointed when we came up nearly empty handed. As a result we decided to dust off our blog and make sure that we shared all of our updates on here.
We hope that the information we share here will not only help our friends and family stay updated with what’s new and exciting in our lives, but also to bring awareness and support to families that walk a similar road after us.
A little more about us…
Amber
Amber works full time for a marketing related business and loves the company and the people she works with. She volunteers her time as a Girl Scout leader and writes the majority of the posts for this blog. She loves travelling and being creative – whether in a bullet journal, scrapbooking or in planning over the top birthday parties. She’s also a personal development junkie, and loves spreadsheets and flowcharts more than is generally considered socially acceptable.
Aaron
Aaron also works full time. He’s amazing at fixing things and DIY projects – if he’s not working on something in our house, odds are he’s picked up a project at someone else’s house. He loves a good challenge and is often found in the garage figuring out how to make things that his wife has threatened to otherwise buy. One things for certain, he’s never bored.
Averie
Averie is our 9 year old daughter and is in 4th grade. She’s both sweet and sassy, is as sharp as a tack, and is as stubborn as a mule. She loves crafting, music, spending time with her friends, travelling with friends and family, going to the library and reading. She’s also an avid collector of ‘stuff’, most of which is saved to be used for a future craft project.
Anderson James (AJ)
AJ is our 3 year old son who is in part-time preschool. He loves his i-pad, sesame street and dancing. In addition to having an infectious smile and the sweetest disposition, AJ also has a “short” list of medical diagnoses, including Trisomy 21 (Down syndrome), hypoplastic left heart syndrome (HLHS), subglottic stenosis, hypothyroidism and factor V Leiden. He is also trach, oxygen and g-tube dependent.
As if that wasn’t enough…
We also run a family owned hand-decorated sugar cookie business at A Cookie Family. Occasionally we share pictures of our favorite cookies over here too.
AJ’s Avengers was created to specifically provide updates for fundraising ventures, both for AJ’s procedures and trips and also for other charities that have helped us out in the past that we support.