Annual Heart Cath, Improved PH Pressures, Ballooned Aorta
by It’s that time of year again. Every January AJ goes into the Cath lab to check his heart function and to make any “minor” interventions …
Author: Amber
Crazy Hair Day
Averie got up early to get her hair done for “tree tinsel” day at school. I wasn’t sure if we would be able to pull …
Christmas Program 2018
Averie’s Christmas program tonight. She’s always so proud of AJ and wants to hold him and show him off to her friends when we are …
Averie’s Christmas Program at Church
Averie’s program at Church – she was an angel. Proud of her for her commitment to going, we can’t always get up and take her …
Glasses aren’t so bad afterall!
We are back home and AJ is acting like nothing ever happened. Happy as can be. He’s also finally wearing his glasses for more than …
No Such Thing as Coincidences – Another Ambulance Trip
I took today off work, I didn’t sleep well and wasn’t feeling 100%. I figured I’d sleep it off and hopefully head up whatever I …
Moving Forward Toward Airway Reconstruction
I’ve been stalling on writing this post, but I need to get it out. When we went to Philadelphia to discuss AJs airway repair, we …
Running Club, Practicing and Improvement.
This girl and I butt heads a lot. She drives me crazy some days and knows how to push every single button that I have. …
Pumpkin Carving 2018
Just realized I never shared our pumpkin carving photos! AJ wasn’t too sure about touching any of the pumpkin guts, but he didn’t protest or …