Trach Ring Trials!
by AJ started doing trach ring trials again — that’s time spent off the ventilator on just oxygen. Right now he’s doing 3x a day for …
Author: Amber
104 Temps, Sick Boy…
Please say a prayer or two for our little man. He’s been under the weather the last few days battling some sort of an infection/virus. …
Sharing Germs…
Well. This momma doesn’t have much to update on AJ at this time — last night I came home and in the middle of the …
Hospital Wedding and Pulmonary Hypertension
I haven’t written an update in a few days. I’ve been a little swamped with things going on, and fell behind! First off…. we are …
When your kid misses your cake smash…
You smash her face in a piece of her own later… And apparently her dad licks it off her face? Eww. Haha!
Wedding Planning and Heart Caths
The last week or so has been a whirlwind of wedding planning. For those who may be unaware, Aaron and I had been planning on getting married …
Bottle Feeding for AJ, Dentist for Averie
The last few days we’ve been cracking away on wedding plans. Nothing like last minute with only a couple of weeks to go! While we’ve …
Passed Swallow Study
AJ passed his swallow study on all consistencies with flying colors! That meant today he got to have his first bottle. He wasn’t so sure …
Self-care Fail
So… yesterday I went in to get my busted tooth looked at. I broke it when I was pregnant with AJ, and with everything else …