Breastfeeding with a Trach
by When we found out that AJ was going to need his trach, it was hard news to accept all around. It was another procedure. It …
Author: Amber
Fighting Another Respiratory Infection…
Earlier this week AJs entire left lung collapsed as he was fighting off the respiratory infections he has. The last few days have been a …
Hats and Tummy Time
I’m not sure who the kind person is that donated hats to the hospital and left a note with them to make sure AJ got …
Desaturating and Turning Blue
The last 24 hours or so have been rough, but we are hoping things are looking up. Normal people have an oxygen saturation level of …
Talks of ECMO, Surgeries and Caths…
This little man is giving MY heart a run for its money tonight. He’s struggled today to maintain his oxygen levels and ended up having …
Unexpected Heart Cath and PICC Line Placement
There was an opening in the cath lab today, and since we have been npo (no food by mouth) for over 24 hours anyway, we …
Cold and Flu Season…
Welcome to cold and flu season. Ugh! Aaron wasn’t able to come up over Christmas or New Years due to having a cold, so I literally …
Merry Christmas 2015
Merry Christmas to all of our friends and family. Unfortunately, Aaron is under the weather, but after pancakes and gifts this morning, Averie and I …
More Vent Weaning
Short and sweet today – AJ has been working on different vent settings – trying the ventilator without pressure support or machine mandated breaths for …