Hospital Gift Ideas for Families and Children
by When someone I know is in the hospital, I typically feel helpless, but want to be able to support them. It’s a pretty universal feeling. …
Author: Amber
HLHS and Down Syndrome – We Aren’t Alone
I strongly recall when we received AJ’s diagnosis. Things were grim. The doctors that came into our room were quiet, subdued, and almost scared to …
First Time Wearing A PMV
Today, AJ was able to test out a Passy Muir Valve for the first time. I’m not usually someone who cries – but this afternoon, …
Fast Scope – Next Up, PMV Trials!
These trips to the OR are getting faster and faster. We have a running joke that Dr. Jacobs can do a scope faster than the …
Will I Ever Get Used to This?
I don’t know if I’ll ever get used to this new life. AJ pulled his trach twice this week. Actually now that I think of …
North Liberty Blues & BBQ
We weren’t functional enough this morning to make the HADSA picnic, but we were able to get ourselves together in time to make it to …
Nest – Country Living and Bever Pool
AJ (and Aaron and I) had an amazing time at the N e s t events today! Averie unfortunately wasn’t able to go since she is off for her …
Belle Plaine Fireworks
Well, it wasn’t our normal Fourth of July celebration, but we still made the best of it! Aaron and I have taken turns feeling under the …
Sesame Place with a Trach and Oxygen
Confession: I was hesitant to take AJ to Sesame Place. I wasn’t sure he would really enjoy it or that it would be worth the …