Glenn Surgery Day & A New Diagnosis – Subglottic Stenosis
by AJ went down to the OR around 9 AM this morning. We had a chat with his surgeon, Dr Gaynor, who always puts my mind …
Category: Anderson James
He’s Back from OR!
Prayers have certainly been answered!! He’s back from OR and settling in to his new bed slot. Everything looks good thus far, his bleeding is …
Night Before Surgery
Hardest thing I’ve done to date? Tucking my kiddo in for bed the night before surgery. He had his bath, was full of happy naked …
AJ’s Getting a Glenn?!
This handsome little boy has no idea what he’s getting into, but all of his amazing progress have managed to get him put on to …
Eat that, Pulmonary Hypertension!
This little man absolutely ROCKED his cath today. Going in, we thought there was a gradient in his aortic arch and he was going to …
Heart Cath #5
Tomorrow AJ will be going in for his fifth heart cath. This ones a little different than the ones before as this time he’s going …
Daddy’s Here
Someone was feeling better today and was back to his normal chatty self. Daddy arrived safe and sound. We switched his feeds to continuous to …
Don’t Take Away my Diuretics!
So this first picture shows what AJ looked like when he first got sick vs what he looked like this morning, after 24 hours off …
Kidney Function Slowly Improving
AJs kidney related numbers looked a little better late last night after having stopped his diuretics – they’re still not perfect, but better. However, the …