Brady’s and Kidney Function…
by Nothing stays uneventful for long, right? Night one at CHOP was uneventful. Night two, AJ started to have some crazy blood pressures. They stopped one …
Category: Anderson James
Back to our Home away from Home (CHOP)
We have nestled in to CHOP after a rather uneventful flight. AJ is currently getting his baseline set here, but thus far he is settling …
Getting Ready to go Back to CHOP
A lot has happened in the past few weeks. We’ve been relatively quiet about it, but it’s time to finally take a moment to catch …
Ultrasound memories
A year ago yesterday Averie announced to everyone that she’d be having a baby brother soon. A year ago yesterday, we still had no clue …
Mother’s Day
These two fill my heart with so much love. I’m so proud to call them both my kiddos. I don’t think I could have asked …
Sick Again…
I don’t have a ton to report. We are still waiting on the official word from CHOP, hopefully sometime in the next week. Today AJ …
Therapy and Crazy Hair
No major AJ updates today – he had therapy and loves it everytime. Mostly because it involves sitting up, playing and getting tummy time. All …
Communication Breakdown and Next Steps Unknown
I haven’t written an update in a little while because things have been very up in the air. I realized today, that just because they’re …
Pulled Trach, Backwards Movement
by Sadly I’m not the word smith Amber is. Some days are harder than others. This is one of those days. AJ pulled his trach out …