HADSA Step Up For Down Syndrome Walk 2019
by Today was the HADSA Step Up for Down Syndrome Walk. HADSA (Hawkeye Area Down Syndrome Association) is one of the organizations that has been incredibly …
Category: Anderson James
Walking Games and Ukulele
AJ has still been working on walking. To be honest, I expected him to have taken off by now. In true AJ fashion though, he …
HLHS and Down Syndrome – We Aren’t Alone
I strongly recall when we received AJ’s diagnosis. Things were grim. The doctors that came into our room were quiet, subdued, and almost scared to …
First Time Wearing A PMV
Today, AJ was able to test out a Passy Muir Valve for the first time. I’m not usually someone who cries – but this afternoon, …
Fast Scope – Next Up, PMV Trials!
These trips to the OR are getting faster and faster. We have a running joke that Dr. Jacobs can do a scope faster than the …
Will I Ever Get Used to This?
I don’t know if I’ll ever get used to this new life. AJ pulled his trach twice this week. Actually now that I think of …
North Liberty Blues & BBQ
We weren’t functional enough this morning to make the HADSA picnic, but we were able to get ourselves together in time to make it to …
Nest – Country Living and Bever Pool
AJ (and Aaron and I) had an amazing time at the N e s t events today! Averie unfortunately wasn’t able to go since she is off for her …
Belle Plaine Fireworks
Well, it wasn’t our normal Fourth of July celebration, but we still made the best of it! Aaron and I have taken turns feeling under the …