Moving Forward Toward Airway Reconstruction
I’ve been stalling on writing this post, but I need to get it out. When we went to Philadelphia to discuss AJs airway repair, we …
I’ve been stalling on writing this post, but I need to get it out. When we went to Philadelphia to discuss AJs airway repair, we …
Just realized I never shared our pumpkin carving photos! AJ wasn’t too sure about touching any of the pumpkin guts, but he didn’t protest or …
Averie went as a shadow, AJ was a cute little old man. We went down to Turner Hall for the costume contest – AJ didn’t …
We decided that if we are going to be in the hospital we are going to make the best of the view today. We are …
Although he’s definitely feeling better in general, we aren’t in the clear yet. AJs blood cultures from the ER came back showing bacteria (Granulicatella adiacens). …
Yesterday we were at the hospital for appointments. He’s been battling a cold that he likely picked up from his sister, but largely handling it …
Three years. Three years of worrying, doctors and therapists, nurses and specialists, medical cares and tube feedings. Three years of pure love and joy, growth …
Day two was even better than day one! And we managed a better “school” picture since we got there early instead of a little late! …
So… this happened! AJ had his first day of school today! We had a rough start in the morning, we were all tired, but he …