Free Download: Letter Flash Cards & Word Matching Templates
by AJ has always been motivated by letters, so we’ve made upper and lower case flash cards and word matching templates for him to work on his next phase of learning!
Category: Special Needs Parenting
Diagnoses Don’t Define Him, But I Let Them Define Me
“Diagnoses Don’t Define Me” is a common phrase in special needs groups. The text is captioned under images of children doing new and amazing things …
A Blended Diet without a Blender?!
Fun fact: you don’t need a blender to feed your kid a “blended” diet! We used this trick when we were first starting solid foods, …
Underwear & Parenting Special Needs Children
As parents we are constantly putting our kids first. Our kids will get new clothes and new shoes while we wear things from three+ seasons …
Pulse Ox Alarms – 8 Ways to Confirm If The Annoying Beeping is Valid
The sound of the pulse ox beeping might be the most obnoxious sound ever. On one hand, the machine is amazing and provides so much peace of mind. On the other hand, the error messages and bad readings are enough to drive me mad! Below are seven of our go-to ways to assess whether the reading is accurate or not.
How we Secure A Pulse Oximeter Sensor/Probe for Better Readings
Here are some of the techniques that have helped us to not only curb (most) of the false alarm beeps, but also to make the sensors last longer. We typically replace a sensor once every 2-3 weeks compared to 2-3 times per week when we first came home.
AJ Update: Weight again
Thursday AJ went to another round of doctor appointments. (Before he got sick). His appointments were overwhelmingly positive. Everyone continues to comment on how he …
Regrets/Guilt and Medical Parenting
Being a parent is hard. Being a medical parent is harder. You can try to fight me on this, but odds are I’ll just tell you I’m too tired to fight.
A Diagnosis of Down Syndrome is not a Death Sentence. – Down Syndrome Awareness Month – Day 31
For the last day of Down syndrome awareness month, I’m going to take us all the way back to the beginning. Our diagnosis story wasn’t …