Siblings – Down Syndrome Awareness Month – Day 30.
by Last night Averie went live with me to do an interview on this topic. We didn’t rehearse it, though I did give her some idea …
Category: Special Needs Parenting
Inclusive Education – Down Syndrome Awareness Month – Day 29.
There is certainly something to be said about the importance of seeing something being done for many of us when learning. AJ is definitely a …
How Common Is It? – Down Syndrome Awareness Month – Day 28
I had no idea how massive the Down syndrome community was until a few months after AJ was born. Community, by the way, is absolutely …
Clothing – Down Syndrome Awareness Month – Day 27.
There are lines of clothing that have been developed by and/or for individuals with Down syndrome. We have struggled in a few areas with AJ …
Milestones – Down Syndrome Awareness Month – Day 26.
AJ is just now becoming an independent walker at four. By contrast, Averie was walking when she was one. Now that said, AJ has friends …
Medical Cares in Public
When we first came home with AJ, I was really self conscious about doing his medical cares in public. I would take his stroller outside …
Sleep Apnea – Down Syndrome Awareness Month – Day 25.
Most children with Down syndrome have regular sleep studies done to monitor for obstructive sleep apnea (and other sleep concerns). Because AJ has a trach …
Stop Using the R Word – Down Syndrome Awareness Month – Day 24
Once upon a time, babies, children and adults were diagnosed as mentally retarded. They were thrown into mental institutions. Parents, siblings and spouses were told …
Organ Transplant – Down Syndrome Awareness Month – Day 23
This fact makes me incredibly angry. When we were first discussing AJ’s diagnosis, so many people would ask us why he couldn’t “just do a …