Different types of Down Syndrome – Down Syndrome Awareness Month – Day 5
by Until AJ was diagnosed and we met with a geneticist, I really had no idea that there was more than one type of Down syndrome. …
Category: Special Needs Parenting
Life Expectancy – Down Syndrome Awareness Month – Day 4.
I knew that medical advances had come a very long way, for all of us, but I didn’t realize they had come this far. A …
Down Syndrome vs Down’s Syndrome – Down Syndrome Awareness Month – Day 3.
Did you know that most syndromes, diseases and disorders are not named after people who had them, but rather by the people who discovered or …
Mild and Severe – Down Syndrome Awareness Month – Day 2.
Down syndrome is diagnosed based on of the presence of an extra 21st chromosome. There is no way to know how that extra chromosome will …
“People with Down syndrome are always happy.” – Down Syndrome Awareness Month – Day 1.
Today marks the beginning of Down syndrome awareness month. Today also marks the beginning of seeing me post bits of information about Down syndrome on …
Encouraging Walking
AJ can get around very proficiently in his walker, as evidenced by the CR Heart Walk and HADSA walk this year. Convincing him to walk …
What is HLHS (Hypoplastic Left Heart Syndrome)?
AJ’s official heart diagnosis is Hypoplastic Left Heart Syndrome (HLHS) and Unbalanced AV Canal. We have spent four years learning about AJ’s heart, learning what …
Medical Parenting Paperwork – Ugh!
Remember when you learned how to read itemized hospital billing statements in school? Wait, what? Pretty sure none of us did that… or at least, …
Hospital Gift Ideas for Families and Children
When someone I know is in the hospital, I typically feel helpless, but want to be able to support them. It’s a pretty universal feeling. …