Special Needs Parenting Archives

HLHS and Down Syndrome – We Aren’t Alone

I strongly recall when we received AJ’s diagnosis. Things were grim. The doctors that came into our room were quiet, subdued, and almost scared to …

AJ has been working on his ABCs – not only by pointing to identify letters but by learning the signs for them. His accuracy may …

When your kid has in essence lived in a bubble for most of his life it often takes some conscious effort to try to remember …

Every year since 2015 this has popped up on my timeline and I’m still as emotionally conflicted now as I have been each of those …

Well, it’s official. AJ is no longer on formula! It’s been 2 weeks now, and there’s no looking back. We were blessed to get a …

Lately we’re all trying new things. I cooked Salmon for dinner, and AJ forwent his standard formula for a dinner of chicken and fruit, the …

So I’m compiling a video of all of the signs AJ knows, but there are a few that are hard to get. Like Momma, which …

Someone had a great weekend – early birthday celebrations – including the fundraiser in the park, complete with giant bouncy house, and he even got …

We’ve been working on some signs with AJ — this one is my favorite!