AJ’s Getting a Glenn?!
by This handsome little boy has no idea what he’s getting into, but all of his amazing progress have managed to get him put on to …
Eat that, Pulmonary Hypertension!
This little man absolutely ROCKED his cath today. Going in, we thought there was a gradient in his aortic arch and he was going to …
Heart Cath #5
Tomorrow AJ will be going in for his fifth heart cath. This ones a little different than the ones before as this time he’s going …
Daddy’s Here
Someone was feeling better today and was back to his normal chatty self. Daddy arrived safe and sound. We switched his feeds to continuous to …
Don’t Take Away my Diuretics!
So this first picture shows what AJ looked like when he first got sick vs what he looked like this morning, after 24 hours off …
Kidney Function Slowly Improving
AJs kidney related numbers looked a little better late last night after having stopped his diuretics – they’re still not perfect, but better. However, the …
Brady’s and Kidney Function…
Nothing stays uneventful for long, right? Night one at CHOP was uneventful. Night two, AJ started to have some crazy blood pressures. They stopped one …
Back to our Home away from Home (CHOP)
We have nestled in to CHOP after a rather uneventful flight. AJ is currently getting his baseline set here, but thus far he is settling …
Getting Ready to go Back to CHOP
A lot has happened in the past few weeks. We’ve been relatively quiet about it, but it’s time to finally take a moment to catch …