Rockstar Averie
by This gorgeous girl had her final conferences of the year today and totally rocked them. 💕. Couldn’t be more proud of how she’s overcome so many …
Ultrasound memories
A year ago yesterday Averie announced to everyone that she’d be having a baby brother soon. A year ago yesterday, we still had no clue …
Mother’s Day
These two fill my heart with so much love. I’m so proud to call them both my kiddos. I don’t think I could have asked …
Sick Again…
I don’t have a ton to report. We are still waiting on the official word from CHOP, hopefully sometime in the next week. Today AJ …
Therapy and Crazy Hair
No major AJ updates today – he had therapy and loves it everytime. Mostly because it involves sitting up, playing and getting tummy time. All …
Communication Breakdown and Next Steps Unknown
I haven’t written an update in a little while because things have been very up in the air. I realized today, that just because they’re …
Pulled Trach, Backwards Movement
by Sadly I’m not the word smith Amber is. Some days are harder than others. This is one of those days. AJ pulled his trach out …
Recovering from his Episode
Just a brief update — It took AJ a good day and a half to recover from his episode earlier this week. He slept the …
“Your Son is Stable Now, but he Coded…”
Today I went to the DMV to get my ID updated. When I was leaving and heading back to the hospital I got a call …