Family Time
by Today Grandpa Art and Grandma Molly stopped in to visit, steal some snuggles, and compete with Averie in some board games. A couple of new friends from …
We are “HOME”!!!!
Guess who has made it back to Iowa today?? I’m told AJ was a gem on his flight here, and he’s currently happily settling into …
#givingtuesday shoutouts
Today is #givingtuesday and I wanted to give a nod to a handful of organizations that have been incredibly supportive of us on this journey. So many …
So Much to be Thankful For
I don’t think anyone will be shocked at my saying that we have a lot to be thankful for this year. Im thankful for AJ, it’s …
BIG News…
Today I kissed this little guy goodbye for my flight home to Iowa for the holidays. Grandma Janet will be staying with him for a little bit …
Trying out CPAP on the Vent
Earlier today, AJ spent an hour with his ventilator switched over to cpap settings. Basically that means that he was in charge of breathing on …
Getting to Hold AJ for the First Time since Trach Placement
Someone’s a happy boy to be out of bed and in his Mommas arms. Not going to lie, I’m pretty happy too. 💕 Now that we …
Cherished Portraits
I almost didn’t share these photos… We didn’t really say much to anyone because we were trying to process what was going on ourselves, but …
Tape Free Life…
This little cutie has almost clear cheeks and is nearly back up to full volume of feeds of skim milk through his fancy gtube as …