Stable – A Heart Mom’s Favorite Word
by Today was exhausting. AJ had appointments in Coralville and Iowa City – five of them to be more precise. We arrived at the first stop …
Tag: CHOP
Back to our Home away from Home (CHOP)
We have nestled in to CHOP after a rather uneventful flight. AJ is currently getting his baseline set here, but thus far he is settling …
Cherished Portraits
I almost didn’t share these photos… We didn’t really say much to anyone because we were trying to process what was going on ourselves, but …
We arrived!! (And the Pope too)
I have never been on such a nerve-wracking trip! My global challenge trip across the ocean was less intense than today’s flight. Funny thing is …
Well we tried to fly out…
So we just went on an adventure. CHOP’s transport team arrived, transferred all of AJ’s stuff, moved him into the isolette, went on an ambulance …
Moving on to a second opinion
The last 24 hours have been a roller coaster of emotions. We’ve known for a while that AJ needed a series of 3 surgeries to …