What is HLHS (Hypoplastic Left Heart Syndrome)?
by AJ’s official heart diagnosis is Hypoplastic Left Heart Syndrome (HLHS) and Unbalanced AV Canal. We have spent four years learning about AJ’s heart, learning what …
Tag: surgery
Glenn Surgery Day & A New Diagnosis – Subglottic Stenosis
AJ went down to the OR around 9 AM this morning. We had a chat with his surgeon, Dr Gaynor, who always puts my mind …
Getting A Trach / Trach Placement Day
We can all breathe a lot easier now – one of us quite literally. AJ is out of OR and back in his room. His …
Norwood Surgery Day
AJ was taken in to anesthesia at 10:30 eastern and we met with our surgeon. He walked us through the Norwood procedure, talked through the …
Out of Surgery!!!
Guess who is out of surgery?! I’m so overjoyed at this point that I’m at a loss for words. He looks so much better – …